The Journey That Changed Our Forever written by A.K.

In 2024, I held my beautiful baby boy in my arms, only to learn that he had Epidermolysis Bullosa, a rare and heartbreaking genetic condition. He spent 8 weeks in the NICU before his gentle soul left this world. Losing him shattered my heart and changed my life .

Choosing to Rise

Grief was part of our days, but hope was part of our choice. My husband and I chose to honor our son by continuing to dream. After 5 months we began a new journey and moved forward with IVF and Preimplantation Genetic Testing to protect our future children from the same fate. The timing was far from ideal. War had broken out in Lebanon. Our home was destroyed. Everything we knew was falling apart. But I didn’t give up. I kept going.

Guided by Faith, Carried by Hope

This journey was not one we walked alone. We were supported by the HOPE Fund, which helped lift the weight of financial stress when everything else felt heavy. In the middle of personal loss and national crisis, that support became a light guiding us forward.

A New Life Begins

Today, I write these words with new life growing inside me. This path has been paved with grief, resilience, faith, and fierce determination. It reminded me that healing is not forgetting, and moving forward is not giving up. It is choosing life even when it hurts.

To the Hands That Held Me Up

To Dr. Ghina Ghazeeri and her extraordinary team, I have no words big enough. Thank you for seeing me, hearing me, and standing beside me. Your compassion, strength, and belief in me gave me the courage to keep believing in myself.
Dr. Ghina, you reminded me that even in the deepest darkness, hope is never lost. That from the ashes of loss, love can rise again.

The Journey That Changed Our Forever written by A.K.

In 2024, I held my beautiful baby boy in my arms, only to learn that he had Epidermolysis Bullosa, a rare and heartbreaking genetic condition. He spent 8 weeks in the NICU before his gentle soul left this world. Losing him shattered my heart and changed my life .

Choosing to Rise

Grief was part of our days, but hope was part of our choice. My husband and I chose to honor our son by continuing to dream. After 5 months we began a new journey and moved forward with IVF and Preimplantation Genetic Testing to protect our future children from the same fate. The timing was far from ideal. War had broken out in Lebanon. Our home was destroyed. Everything we knew was falling apart. But I didn’t give up. I kept going.

Guided by Faith, Carried by Hope

This journey was not one we walked alone. We were supported by the HOPE Fund, which helped lift the weight of financial stress when everything else felt heavy. In the middle of personal loss and national crisis, that support became a light guiding us forward.

A New Life Begins

Today, I write these words with new life growing inside me. This path has been paved with grief, resilience, faith, and fierce determination. It reminded me that healing is not forgetting, and moving forward is not giving up. It is choosing life even when it hurts.

To the Hands That Held Me Up

To Dr. Ghina Ghazeeri and her extraordinary team, I have no words big enough. Thank you for seeing me, hearing me, and standing beside me. Your compassion, strength, and belief in me gave me the courage to keep believing in myself.
Dr. Ghina, you reminded me that even in the deepest darkness, hope is never lost. That from the ashes of loss, love can rise again.